Friday, June 17, 2011

You are who you choose to be

Here's a little background information behind this blog.

My brother, Trent, has a rare bone disease called McCune Albright Syndrome which consists primarily of Fibrous Dysplasia (makes the bones brittle and easily breakable) and endocrine system abnormalities (like Hyperthyriodism - thankfully it's no longer an issue).  When Trent was diagnosed with this disease, my parents didn't knowhow to navigate this new phase in their lives.  It was then that they received the best advice they ever could have: "treat him normally".  And they did.  Trent is a perfectly normal, hilarious, intelligent, wonderful, loving, and sometimes annoying little brother whom I love more than I can say.

Despite the severity of his disease, Trent's life-long doctor, Dr. Stanton, was determined to make that statement/advice a reality.  His main goal was to keep Trent out of a wheelchair and walking.  Here is the note my brother wrote to Dr. Stanton after his graduation:

I choked up reading it.

Dr. Stanton:

Thank you so much for your kindness in sending me the check for $75.00 for my graduation. I plan on continuing at our local community college then hopefully transfer to Grove City College.
Thanks to you I am not in a wheelchair and I have lived a relatively normal life. That is the greatest gift I was ever given and on graduation day I was reminded of that gift as I walked down the aisle.
Thank you for everything.

Trent
He's a testament to the fact that you aren't defined by your circumstances, challenges, disabilities, etc.  Thank you to the doctors who gave my parents that invaluable advice.  Thank you to the doctors that have enabled Trent to lead a normal life.  Mostly, thank You God for Your never ending mercies, grace, and love. God truly is sufficient.

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